Don't forget to brush (and floss) your teeth!

That may sound like a funny title, and you are probably saying to yourself, "Eww! Of course I remember to brush my teeth!"

The reason for my post is that while I was undergoing chemotherapy, and fighting for a life that was likely to be cut way too short, taking care of my teeth was the last thing on my mind. And, apparently, it also wasn't a concern of my doctors.

While I was going through chemo, my sister had braces. One day, about a year into my treatments, I was feeling pretty good, and I accompanied my mom and sister to her orthodontist appointment. That day, there was a visiting doctor in the office. A very nice man, who offered to take a look at my mouth while my sister was brushing her teeth. I remember him telling my mom and I that chemo causes dry mouth (this I knew very well!) and that because there was a lack of saliva, that bacteria could grow.

It's funny, because I remember this conversation very well now, but did not think too much of it during those days of treatment. There were days in those beginning months where I was so depressed that I had to be made to get up and take a shower. I really truly wish I had taken better care of my teeth and brushed every day, if not twice a day.

Anyway, over the last few years, I have had a lot of oral problems, mostly all stemming from side effects of chemo. I have had four root canals, and two were unsuccessful and lead to extractions of the teeth. Both of those happened before I was 30. I have found a dentist who is working with me to get my mouth back up to par. This includes having five teeth pulled, luckily, three of which are my wisdom teeth (the fourth one never came in), but that is still two more molars that I am losing.

I have been planning to write something like this for weeks now, but what actually made me sit down and write it is that the very woman who saved my life, my family nurse practitioner, is also fighting a battle that flossing her teeth might have prevented.

Laura suffered a stroke while driving last year. Over the past year she has made leaps and bounds towards her recovery, but in the last few weeks she developed an infection in her brain. It was recently discovered that the infection was quite possibly caused by gum disease. In a recent update, Laura asked her daughter to remind family and friends to floss their teeth! The doctors have given her antibiotics and they believe the infection will go away.

Back to my original topic. Take care of your mouth! There are so many health issues that can be avoided just by brushing and flossing daily.

For anyone currently going through chemotherapy, here is a link to Colgate's website, and information on chemotherapy and dental health. Here is another link for Livestrong that has information from the American Dental Association, National Cancer Institute and the Siteman Cancer Center.

CBS News Story

My mom sent me a link tonight to a CBS News story on Adolescents and Young Adults with cancer, and how this is a growing group of cancer patients. The story focused on two cancer patients who are in remission or cured, but who have issued stemming from their chemotherapy. Reading the article, I was reminded of what I went through, but it was when I watched the video that a wave a nausea and/or anger came over me.

When I was told I had cancer, before I had any biopsies done, or any diagnostic tests to try and pinpoint the cancer, I made it known that my biggest fear was that it was in my female parts and that I would have to have a hysterectomy. When I found out that it wasn't gynecological, my mind went to fighting whatever it was. At the time, before beginning any treatment, no one ever asked me about saving my eggs for the future. I was 22 years old, and I had every intention of beating cancer. I was also in a long-term, monogamous relationship.

I have blogged before about wanting kids and not knowing if that will ever happen for me. It seems irresponsible for my doctors, any of them, all of them, to not have this conversation with me. I know my prognosis was not good, and it only got worse once I started treatment; but here I am. I am 31 years old, married to a wonderful man, and I don't know if I will ever be able to have children of my own. And that sucks.

Here's to 2012 Being the Healthiest Yet

As I mentioned in an earlier post, I have struggled with my weight all my life. But that struggle is probably what saved my life. Many women would be horrified to share their actual weight with the world, but in this new era of reality TV (with Biggest Loser and Celebrity Fit Club being huge successes), more women are sharing. I am going to join their ranks, as a way to help myself keep losing weight.

First of all, I am doing this without the help of programs like Weight Watchers or Jenny Craig. The big reason, I love food, and I love to cook. I cannot imagine having prepackaged foods sent to my house weekly. What I am doing is cutting down on, and keeping track of, my calories. This past August, while visiting Orlando, I purchased a Fitbit Trainer. I was looking for a pedometer to keep track of the steps I took while walking around Walt Disney World and Universal Orlando. What I got was so much more. The Fitbit Trainer counts your steps, but also calculated distances, calories burned and keeps track of your sleep efficiency. That in itself is pretty cool, but what is truly awesome is the accompanying website http://www.fitbit.com/. The site lets you keep track of the foods you eat. There is a database of common foods, and you can add to the database if what you ate is not listed. You can also create meals, by adding the ingredients. Once I figured this all out, I cut my caloric intake down to 1600-1800 calories a day.

At my heaviest, I weighed 279 pounds. When I first heard this number, I was so disappointed in myself. Granted, in a lot of ways, I had no control of the weight I gained. When I was diagnosed with Hypomagnesemia (a condition where my body is low on magnesium, an essential electrolyte) in September of 2004, I was given daily magnesium infusions. The magnesium was administered in one liter of saline. As you know, saline is salt water. I do not know exactly how many liters of salt water I was given, but I gained so much weight, that in the spring of 2005 I asked my doctor if they could put the magnesium in a smaller amount of liquid. I really wish I had asked this question months earlier, as they were able to administer the dosage in 50 milliliters of dextrose, a sugar solution.

When I got married in May of 2007, I had lost about 15 pounds and was happier with myself. I think that came from the amount of walking I did around Las Vegas, while I was finishing my Bachelor's degree at UNLV. A few more years, and I had gotten down to 250 pounds, which made me feel better, as I was only 10 pounds heavier than what I was before I got sick. At the time, this was a number I could live with.

Today, I weigh 228 pounds. My goal weight (for now) is 200 pounds. My Fitbit website says that I should reach that goal by July of this year. That excites me, because my brother is getting married in October, and I look forward to rocking a great dress. It has been a while since I have looked forward to buying a dress (or any clothes for that matter). My sister will also be getting married in a little over a year, and that gives me an even bigger incentive to get my but in gear and get fit and HEALTHY.

November 2006, approximately 280 pounds

December 2011, approximately 230 pounds

What are some things that you do to keep off the weight, or live healthier after the chemo is done? For those of you still fighting the battle, do you think about what you will do once it is over, or is the focus on the here and now? What about for those who are just trying to live a healthier life? Any pointers, recipes, or just general support is greatly appreciated!

(NOTE: This is not an advertisement for Fitbit. I just love mine!)

Happy New Year!

I can't believe it has been almost a year since I have posted on this blog. Wow, I guess this can be seen as a good thing. It means I am putting my cancer diagnosis behind me, as best I can.

The last year has been a pretty good one. My most recent CT Scan came back clear, which is always good. I am still in remission. I still don't want to use the word "cured" as I don't really know if I will ever be considered cured.

I did have a scare last spring, that may or may not be related to my cancer diagnosis. I was having major lower right facial pains, which was diagnosed as trigeminal neuralgia, but in true Lonnie form, my symptoms were much different from the normal presentation. I won't bore you with all the details, but I will say that after many trips to a neurologist, an MRI, and 9 months of Gabapentin (greatest multi-use drug out there), I have not had any pains in close to 9 months.

This year I hope to finish telling my story (which includes taking time to scan pictures), or at least continue telling my story, as I plan to have a long and HEALTHY life. Now that I have graduated from grad school, I may actually have the time to do this.

Happy New Year to all, and best wishes for good health!

Chemotherapy

I was diagnosed with Metastatic Carcinoma of Unknown Primary. Big words that basically meant I had cancer, it had spread, and they didn't know where it started. How do doctors treat something that they don't know much about? Shotgun therapy. That is what we were told they were going to do. At the time, I had heard this phrase before, but I really had no clue what it meant. Apparently, it means shoot it with all they've got, and hope and pray it works. This is EXACTLY what we did.

I began my chemo treatments on a Friday in May. (Quite possibly the first Friday, but I don't remember the exact date.) When I met with Dr. Guidice to go over my prognosis and treatment plan, he told me that we would try this shotgun therapy, every three weeks. And if I didn't take well to it, to let him know and we would stop. Otherwise, every three weeks, with CT scans like every 12 weeks. The chemo, Taxol and Carboplatin, would be administed over 6 hours.

My first chemo session at New Mexico Oncology

Marshall came in for my first chemo treatment. I was scared, but opptomistic that this would save my life. I don't remember a lot from that first day. I got there and was taken to a private room with a bed. An IV was started, and blood was drawn. Like most therapies, my blood counts were important in the dosage. I was given saline to keep the vein open while they ran my labs. I wish I could remember what was said to comfort me, and my family, on this first foray into being a cancer patient, but I really don't. Another standard of my chemo, was a dose of Benadryl, given through the IV, in case I had any sort of allergic reaction. Benadryl, of course, puts me to sleep. So I was excited that I would get to sleep through most of the chemo, since 6 hours is a LONG time. Well, I had hoped I would sleep. Funny thing about receiving IV fluids over 6 hours, it makes you have to pee. Like every half hour it seemed. Luckily, the restroom was right outside the private room I was in, unluckily, I was extremely weak. Marshall had to help me up each time, and the toilet in the bathroom was so low, I could not physically pull myself up, after going to the bathroom. I wish I could say that this was the worst humiliation I suffered while going through treatments, but it was just the tip of the iceberg.

The nursing staff at New Mexico Oncology really were my angels, and for my second chemo, had gotten a toilet riser, which if you have never heard of this, it is an elevated seat, with handles. I was so very excited that I would not need help getting off the toilet. Only problem, I was getting weaker and weaker as the weeks went on. Getting up was no longer the main issue, but just getting to the bathroom in the first place. Again, the wonderful nurses had another idea to make my chemo sessions as hassle-free for me and my mom (and Marshall when he could make it) as possible. They suggested a catheter. Wait, what?!?!? Yeah, that doesn't sound hassle free, AND it sounds painful. It took a little convincing, but the catheter won out in the end. I don't remember exactly how many weeks and chemo treatments I had a catheter inserted, but it was a few or more. There were definite ups to the catheter. I could sleep through the treatment once the Benadryl kicked in, which was generally around 3-4 hours.

I wrote earlier of secondary effects of chemotherapy, but there was some immediate effects I had to deal with. First, chemo plays havoc on your blood cells, so even though I was only scheduled for chemo every three weeks, I had to go into the oncologists office every Friday, to have my blood drawn. Depending on my levels, red blood counts and white blood counts, I had a have a shot, sometimes two. Pretty much every Friday I had to have a Procrit shot. This shot is to help increase the amount of red blood cells, and hurts like hell. The best way to receive this shot is very slowly, as it burns less. The shot for white blood cells, Neupogen was given less often, but was much worse. You see, in order to produce more white cells, you have to get the bone marrow involved, and for those of you who don't remember, bone marrow is INSIDE the bones. Stimulating the inside of the bones is not fun, and very painful. This shot was also given in threes. After three injections, they would check my blood again, and if they white blood cells hadn't increased, I had to keep getting the shot. I learned after the first shot to take ibuprofen BEFORE the shot. On those Fridays, when I wasn't sure if I neeed the Neupo (as it was referred to) or not, I would take 400mg of ibuprofen right after.

Chemo, and weekly blood tests became a steady part of my life, and I guess the biggest thing I can say, at least I was never afraid of needles.